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1/11/2024

Clinical Research Paper from the Indiana LEND selected by the American Academy of Pediatrics as a 2023 Top 10 Practice-Changing Article.

A group of clinical researchers, led by Rebecca McNally Keehn, PhD, HSPP, and including Indiana LEND faculty and fellows, published a paper in the journal Pediatrics, which evaluated the diagnostic accuracy of the Indiana Early Autism Evaluation (EAE) Hub system, a statewide network that provides specialized training and collaborative support to community primary care providers in the diagnosis of young children at risk for autism spectrum disorder (ASD).

 
 

1/11/2024

Indiana LEND's Rebecca McNally Keehn receives the Rising Trailblazer Award

Indiana LEND�s Rebecca McNally Keehn, PhD, HSPP, was awarded the Indiana University School of Medicine�s 2023 Rising Trailblazer award. The award recognizes outstanding early career faculty who are emerging trailblazers in the Department of Pediatrics. Dr. McNally was nominated for her leadership and innovations, with impact that spans many areas, most notably in research, advocacy, and equity. Her contributions have resulted in meaningful innovations that have impacted the lives of children and families across Indiana.

 
 

1/11/2024

Research Paper from the Indiana LEND selected for the 2022 IACC Summary of Advances

The 2022 IACC Summary of Advances in Autism Research provides summaries of the top 20 advances in autism biomedical and services research selected by members of the Interagency Autism Coordinating Committee (IACC). Articles in the Summary of Advances are grouped according to the topics represented by the seven Questions of the 2021-2023 IACC Strategic Plan for Autism Research, Services, and Policy (Screening & Diagnosis, Biology, Genetic & Environmental Factors, Interventions, Services & Supports, Lifespan, Infrastructure & Prevalence). In addition, the IACC has released an easy-read version to accompany the 2022 Summary of Advances that uses plain language to summarize the full publication in a brief, accessible format.

 
 

1/11/2024

Social Work Programs Support Parent and Family Education at Baylor College of Medicine and Texas Children's Hospital

The Meyer Center for Developmental Pediatrics and Autism at Texas Children�s Hospital and Baylor College of Medicine provides diagnostic evaluations and individualized treatment plans for children with autism and other developmental diagnoses. Following the Meyer Center evaluation, each family receives individualized recommendations for care, information about evidence-based interventions including special education, therapies and other community-based services, and guidance about how to best access these services in their local communities. Families are also provided access to Meyer Center educational programs on a variety of different topics.

 
 
Three African women stand in front of three African men, all holding blue certificates from the US Department of State.

1/10/2024

University of Massachusetts Boston Institute for Community Inclusion Partners with the International Disability Alliance and the African Disability Forum on International Fellowship Program

The Institute for Community Inclusion (ICI) at the University of Massachusetts (UMass) Boston, in collaboration with the International Disability Alliance (IDA) and the African Disability Forum (ADF), has been awarded a grant from the US Department of State to launch the third round (FY 2023) of the Professional Fellows Program on Inclusive Civic Engagement. This program, designed for emerging leaders in East Africa, aims to facilitate exchange and implementation of best practices for disability-inclusive civic engagement.

 
 

1/9/2024

Researchers Find Possible Neuromarker for 'Juvenile-onset' Batten Disease

New research from the University of Rochester Medical Center, an AUCD IDDRC Network site, suggests an easy-to-measure brain process may be a target or biomarker in measuring treatment outcomes in clinical trials for patients with Batten disease.

 
 

1/8/2024

Disability Policy News | January 8th, 2024 | Vol. MMXXIII | Issue 83

AUCD, Disability Policy News In Brief, every MondayBudget and Appropriations; Office of Management and Budget Releases Digital Accessibility Guidance for Critical Government Resources, Biden-Harris Administration Releases New Medicaid and CHIP Renewal Data and more.

 
 

1/5/2024

Dr. Marcia Montague selected as the 2023-2024 Provost Academic Professional Track (APT) Faculty Teaching Excellence Awardee

Established in 2019 with a gift from the Marie M. and James H. Galloway Foundation, the Provost Academic Professional Track (APT) Faculty Teaching Excellence Award encourages, recognizes and rewards faculty recipients for exceptional teaching practices that create meaningful learning experiences for students.

 
 

1/5/2024

PATHS Graduate Highlight: Averie Lane Class of 2019

Since 2019, PATHS graduate, Averie Lane, has been very busy! Upon graduation, Averie has completely immersed herself in caring for children both at the daycare where she works and as a traveling nanny. Averie now has her own babysitting business that has really taken off. The word has spread throughout the community about the amazing level of care that she provides for each child that she is responsible for.

 
 

1/3/2024

Call for Applications: Healthy Weight Research Network 2024 Pilot and Feasibility Program

Deadline: February 16, 2024 (midnight)

Applications for the Healthy Weight Research Network 2024 Pilot and Feasibility Program are being accepted until February 16, 2024 (midnight). The goal of the Pilot & Feasibility Program is to advance the research agenda of the Healthy Weight Research Network (HWRN) by funding small pilot projects that foster the development of significant and innovative research by members of the Network and their collaborators.

 
 

1/3/2024

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Receives DOD Grant to Study Telehealth Deployment Across Rural Areas of Tennessee

The Vanderbilt Kennedy Center (VKC) (TN IDDRC, UCEDD, LEND) has received a $3.1 million grant from the Department of Defense (DOD) to study telehealth deployment across rural areas of Tennessee. The grant builds on a recent study that showed autism profiles can be identified early with the TELE-ASD-PEDS (TAP) tele-assessment tool created by the VKC and Monroe Carrell, Jr. Children's Hospital at Vanderbilt's Division of Developmental Medicine.

 
 

12/22/2023

AUCD 360 - December 2023

 
 

12/19/2023

Enlarged Spaces in Infant Brains Linked to Higher Risk of Autism, Sleep Problems

For the first time, researchers at the UNC School of Medicine's UNC Psychiatry, an AUCD IDDRC Network site, discovered that infants with abnormally enlarged perivascular spaces have a 2.2 times greater chance of developing autism, compared to infants with the same genetic risk. Their research also indicated that enlarged perivascular spaces in infancy are associated with sleep problems seven to 10 years after diagnosis.

 
 

12/19/2023

MCDD Hosts Project SEARCH Intern

The Maryland Center for Development Disabilities (MCDD) recently hosted an intern from Project SEARCH at Kennedy Krieger Institute. Project SEARCH at Kennedy Krieger Institute is a 10-month transition program for individuals 18 through 24 years of age that provides hands-on job training through integrated worksite rotations, career exploration, innovative adaptations and mentoring from experienced staff. Its goal is for interns to use their internships skills to gain competitive employment.

 
 

12/18/2023

Disability Policy News - December 18, 2023 | Vol. MMXXIII | Issue 83

AUCD, Disability Policy News In Brief, every MondayBudget and Appropriations; Census Bureau Releases Proposed Changes to Disability Data Collection; Centers for Medicare and Medicaid Services Releases Health Equity Briefs and more.

 
 

12/14/2023

Center for Transition to Adult Health Care for Youth with Disabilities Launches New Website

The Center for Transition to Adult Health Care for Youth with Disabilities, a national resource center funded by ACL's Administration on Disabilities (AoD), has launched a new website to help young people with intellectual and developmental disabilities (I/DD) direct their own transition to the adult health care system. The site also includes resources developed by Center partners, including Family Voices, Got Transition, SPAN Parent Advocacy Network, and two AoD-funded University Centers of Excellence in Development Disabilities (UCEDDs): the Institute for Human Development at University of Missouri-Kansas City and the Waisman Center at the University of Wisconsin-Madison. Both of these UCEDDs have done extensive work in the field of health care transitions for youth with I/DD.

 
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